Growing Bolder Community

O.K. – So here’s the deal. My husband and I took our 11 year old son out for a quick bite to eat tonight at a favorite local restaurant. Our son is tall and thin and looks much older that his 11 years. The hostess at the restaurant greeted us and proceeded to grab a children’s menu which highly offended our pre-teen, and he politely asked for an adult menu - which took a lot of courage...

It is a lovely, sunny and warm Florida summer day. My youngest is complaining loudly that he is bored. The constant whining of “Mom, there’s NOTHING to do!” echoes throughout the house. I try to ignore his cries and delve further into my novel. In the blink of an eye, I am falling backwards in time and land ever so gently on the hammock in my parents’ backyard, swaying slightly,...

I recall the Labor Day weekend when I was about 12. My family (Dad, Mom and sis) had gone to a barbeque at a friend’s house. They had 5 children and their house was always bustling with friends and family. It was a healthy, happy place to be. We kids all settled inside around the television to watch the Muscular Dystrophy Telethon hosted by Jerry Lewis. Moved by the tender stories of...

Hi All – I belong to an on-line support group for patients with Charcot Marie Tooth Disease. (CMT) With each posting by a parent whose child has had to endure unprofessional, unpleasant, uncooperative, unresponsive behavior from the educational system in our country I become more and more frustrated. It doesn’t matter where we live; our CMT children pose a unique challenge to the...