Debilitating Disease Weakening Athlete’s Body, Not Spirit

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Last Updated on October 20, 2020

Slowly and steadily, Jonah Berger’s body is turning on him. Since the age of 5, he’s known that he suffers from the disease, Charcot–Marie–Tooth or CMT.

CMT weakens the muscles in legs, arms and hands, making any fine motor task difficult.

Jonah needs leg braces to get around, but he refuses to let his disability slow him down. He has climbed mountains, completed grueling bike rides across states and even completed a triathlon.

Now, he’s sharing what he’s learned through this struggles and triumphs in his new book, “He Walks Like a Cowboy: One Man’s Journey Through Life With a Disability.”

Jonah explains the book was born out of his desire to use his stories to help people with and without disabilities. His story is proof that anything is possible.

Jonah says he feels lucky to be surrounded by supportive friends and family, particularly his athletic friends who help him with his physical challenges.

For the past several years, things like buttoning a shirt or picking a penny off the ground have been really difficult for him.

So why would he push his body to complete a triathlon? Jonah explains the tremendous training and rehab it took to get him ready for the event and what it felt like to cross the finish line.

Plus, find out how he’s helping others through his therapeutic mentoring program The Rhythm Within.